Privacy Policy

Overview

HD Research Hub is an open-source, non-commercial research project. We are committed to protecting the privacy of every visitor. This policy explains what data we collect (very little), how we use it (only for improving the site), and your rights.

What We Collect

Information We Do NOT Collect

• We do not ask for names, emails, addresses, or phone numbers
• We do not require accounts or registration
• Please do not enter personal or health information into research chat
• We do not use cookies for advertising or cross-site tracking
• We do not sell visitor data; service providers process information as described below
• We do not track individual visitors by name or identity

Analytics

Collection is currently paused. The analytics loader is disabled by default while automatic-collection settings are reviewed. The description below applies when collection is enabled.

We use Google Analytics 4 (measurement ID: G-N8BMJ7ZG5V) to understand how this site is used. This helps us improve the content and prioritize research areas. Google Analytics collects:

• Page views and session duration
• General geographic region (country/city level, not precise location)
• Device type, browser, and operating system
• Referral source (how you found the site)
• Predefined research actions, such as opening a study, following a source, and chat completion or fallback outcomes

Our custom workflow events exclude question and answer text, search terms, study identifiers, source URLs, and reading-level selections. Page URLs sent by our analytics loader omit query strings and fragments. We use aggregate reports; Google Analytics may use cookies to distinguish browsers and sessions, so this should not be understood as fully anonymous collection. You can opt out with the Google Analytics Opt-out Browser Add-on or browser privacy controls. For details on Google's processing, see Google's Privacy Policy.

Other Information Collected Automatically

• Hosting logs: Our hosting provider (Vercel) may collect basic server logs including IP addresses, browser type, and pages visited. This data is used solely for infrastructure monitoring and is subject to Vercel's Privacy Policy.
• Google Translate: If you use the translation feature, Google processes the page content to provide translation. This is subject to Google's Privacy Policy.

Data Sources

All research data displayed on this site is sourced from publicly available databases:

• PubMed (pubmed.ncbi.nlm.nih.gov). Published research papers
• ClinicalTrials.gov (clinicaltrials.gov). Clinical trial registrations
• HDBuzz (en.hdbuzz.net). HD community news (via public RSS feed)
• Open Targets (platform.opentargets.org). Drug-target associations

We do not modify the source data. We aggregate and display it for research and educational purposes.

AI-Generated Content

Some content on this site (drug repurposing hypotheses, research scores) is generated by AI models running on our infrastructure. This content is:

• Clearly labeled as AI-generated
• Not a substitute for professional medical or scientific advice
• Published for community discussion and further research
• Research pipelines may run locally. Interactive chat uses a hosted model through Google's Gemini API: submitted questions, conversation context, and retrieved research passages are sent to that provider to generate an answer. Do not submit personal or medical information.

Third-Party Links

This site links to external organizations (HDSA, HDBuzz, HDYO, ClinicalTrials.gov, etc.). We are not responsible for the privacy practices of these sites. We encourage you to review their privacy policies.

Children's Privacy

This site is designed for general audiences interested in HD research. We do not knowingly collect information from children under 13. If you believe a child has provided personal information, please contact us.

Open Source

This entire project is open source under the MIT License. You can inspect every line of code, including this privacy policy, at github.com/jravinder/hd-research-agent.

Your Rights

To stop analytics tracking, use the Google Analytics Opt-out Add-on or browser privacy controls. For general privacy questions, open an issue on our GitHub repository. GitHub issues are public: do not include personal information, medical details, or private chat content.

Changes to This Policy

We may update this policy as the project evolves. Changes will be reflected in the "Last updated" date above and committed to our public GitHub repository.

Contact

For privacy-related questions, please open an issue at github.com/jravinder/hd-research-agent/issues.